Ena's Story

My son Michael is thirty-two and has a learning disability. I have been his carer since the day he was born, and I would not change him for the world. But navigating the system — the assessments, the reviews, the forms — that is what wears you down.

Every few years, it feels like we have to justify his needs all over again. The language changes, the criteria change, the people making decisions change. Michael stays the same. He still needs support with daily living, still needs someone to advocate for him, still deserves a good life.

Carers in Luton helped me understand my rights and Michael's rights. They came with me to a review meeting and helped me articulate what Michael needs in a way the panel could hear. That support made all the difference. Sometimes you just need someone in your corner.